Gillian Updates

Sunday, June 24, 2007

Two kids slows us down...

It has been a long time since we updated the blog. Here is a link to some recent videos of Gillian before and after her foot surgery on June 1st. She is doing great and we're looking forward to her learning to walk once the cast is off.



Gillian's YouTube Stuff


T&C

Wednesday, October 18, 2006

An Update....

We are so excited to be able to share this with all of you! We have
finally scheduled Gillian's dedication at our church (Adventure
Christian Church in Roseville) on October 29th at 9am. We know that
many of you live out of town, but we wanted to invite you all to come
celebrate with us. We will be hosting an open house after church that
day, and would love for you to come. Please let us know if you can
make it.

Gillie has been doing really well! She's even starting to stand
during therapy sessions with her braces on. We were also so excited
to watch her climb all the way up the stairs in our friend's house
the other day!!! Wow! God is good! As you know, she had a shunt
placed in her brain in June. We really think this has made a huge
difference in her development. She started crawling the day after we
brought her home from the hospital! She is also able to do things
with her hands that she had previously had trouble with (holding and
releasing objects, etc.). She started talking about a month ago too!
She loves to imitate words and sounds. She will even pause while
she's drinking her bottle to say a new word she's learned (today it
was... drink, drink, "bus," drink some more, "bath," drink again,
"elbow..." and on an on with a HUGE smile on her face). Feeding time
is taking a long time now!!

We also discovered during one of our UCSF visits that her bladder
hadn't grown since she was born. We were able to start a new
medication to help stretch it out and hopefully decrease the chances
of a future bladder surgery. We were having some trouble with night
wakings after staring this medication, but it seems to have leveled
out. Hooray!

We hope all is well with all of you. We thank you again for your
prayers and words of encouragement for our family! We would
appreciate your continued prayers for Gillian's motor development.

Love,
Christy, Todd, Jordan, and Gillian

The News

Hi again everyone,

We are so excited to be able to share this with all of you! We have
finally scheduled Gillian's dedication at our church (Adventure
Christian Church in Roseville) on October 29th at 9am. We know that
many of you live out of town, but we wanted to invite you all to come
celebrate with us. We will be hosting an open house after church that
day, and would love for you to come. Please let us know if you can
make it.

Gillie has been doing really well! She's even starting to stand
during therapy sessions with her braces on. We were also so excited
to watch her climb all the way up the stairs in our friend's house
the other day!!! Wow! God is good! As you know, she had a shunt
placed in her brain in June. We really think this has made a huge
difference in her development. She started crawling the day after we
brought her home from the hospital! She is also able to do things
with her hands that she had previously had trouble with (holding and
releasing objects, etc.). She started talking about a month ago too!
She loves to imitate words and sounds. She will even pause while
she's drinking her bottle to say a new word she's learned (today it
was... drink, drink, "bus," drink some more, "bath," drink again,
"elbow..." and on an on with a HUGE smile on her face). Feeding time
is taking a long time now!!

We also discovered during one of our UCSF visits that her bladder
hadn't grown since she was born. We were able to start a new
medication to help stretch it out and hopefully decrease the chances
of a future bladder surgery. We were having some trouble with night
wakings after staring this medication, but it seems to have leveled
out. Hooray!

We hope all is well with all of you. We thank you again for your
prayers and words of encouragement for our family! We would
appreciate your continued prayers for Gillian's motor development.

Love,
Christy, Todd, Jordan, and Gillian

Saturday, June 24, 2006

More UCSF Pics


More UCSF Pics
Originally uploaded by tosterbe.

More UCSF Pics


More UCSF Pics
Originally uploaded by tosterbe.

More UCSF Pics


More UCSF Pics
Originally uploaded by tosterbe.

More UCSF Pics


More UCSF Pics
Originally uploaded by tosterbe.

UCSF Pictures


UCSF Pictures
Originally uploaded by tosterbe.

Monday, June 12, 2006

We Survived the Wiggles


We Survived the Wiggles
Originally uploaded by tosterbe.

Sittin' with Dad


Sittin' with Dad
Originally uploaded by tosterbe.

Gillie & Faith


Gillie & Faith
Originally uploaded by tosterbe.

Miss Gillie


Miss Gillie
Originally uploaded by tosterbe.

June Update

Hi everyone,

We are writing to ask for prayer for Gillian once again. She had an
MRI in San Francisco a few weeks ago that showed she is developing a
syrinx (cyst) at the top of her spinal column. Her neurosurgeon
believes that the syrinx is being caused by the extra fluid in the
ventricles of her brain (hydrocephalus). Because of this, he's
decided that she needs to have the shunt surgery after all. We have
her surgery scheduled next Tuesday (June 20th) at 2 pm. We would love
your prayers for her health between now and then. She just got over a
cold/ear infection, and has now broken out in small patches of hives
two times in the last few weeks. We have no idea why (possibly caused
by a virus or an allergic reaction to latex or ??), but the doctor
didn't know if she'd have clearance to have the surgery if the hives
are still there next week. Please also pray for her on the day of the
surgery, since she won't be able to eat all day (which is really hard
for a one year old).

On to happier news... Gillian is an amazing baby! She had her first
birthday on June 1st (can you believe it?!) and ate almost an entire
flower cake all by herself! She just started "commando crawling" and
is now able to get into a sitting position. She has some sort of
therapy (physical therapy, occupational therapy, sensory motor gym,
etc.) almost every day, which we think has really helped with her
development. On top of all of that, she's really cute too! She's
still a very happy and content baby, although she's starting to
become more vocal about her wants and needs! We had to take her out
of church yesterday because she had decided that the singing time
needed to continue well into our pastor's sermon!

Thank you all so much for your support and prayers. We really
appreciate all of you! We will try to update her blog with pictures
and more updates as we find out more information
(gillianosterberg.blogspot.com).

Love,
Todd, Christy, Jordan, and Gillian

Please pray for:
* Gillian's surgery at 2pm on Tuesday, June 20th
* Strength for her (and us) to deal with not being able to eat the
day of the surgery
* Her health between now and then
* A quick recovery without complications so we can get back home to
Jordan as soon as possible
* Protection from infection along the incision sites (one on her
head, and one on her stomach)

Monday, March 27, 2006

Gillian Update

Wow, it’s been a long time since we updated this site. Can you believe Gillian will be ten months old on April 1st. So much has changed in the past few months. We are writing because we need your prayers once again. We just got back from our spina bifida clinic at UCSF and learned that Gillian will most likely need a shunt surgery. We will talk to the neurosurgeon on Tuesday afternoon to discuss his recommendations, but we are about 98% sure he will be recommending placement of a shunt. Gillie has always had a little extra cerebrospinal fluid (CSF) in the ventricles of her brain (called hydrocephalus). Up to this point, her doctors have been comfortable waiting on the surgery since all of her ultrasounds and CT scans haven’t shown much change in the amount of fluid. The one thing they’ve been concerned about is that her head circumference is getting bigger every time we measure it (to the point that it’s not following a curve on the growth chart). Apparently there have been several children they’ve seen in the same situation. Some decided to put the shunt in, and some didn’t. We were told that some of the kids who opted not to have the surgery do have some subtle neurological problems (cognitive/motor delays, etc.). It is uncertain whether a shunt would have changed their situation or not, but at this point, we don’t think we’re willing to let that happen. We are feeling really disappointed and sad about this since we thought she had beaten the odds on this one. Please pray for strength, and wisdom as we have to make this decision in the next few days.
 
On a happier note, Gillian is blossoming into a beautiful little girl, and is learning new things every day. She is rolling over, sitting, and scooting backwards on her tummy. We’ve also been working on standing with the help of her AFO’S (Ankle Foot Orthotics) and shoes for stability. She is such a joy! Probably the most happy, content little baby we’ve ever met (and most beautiful too… ok, I guess we’re a little biased). She loves to sit in the middle of the family room with a basket of toys or books and watch her brother’s antics. She has Occupational therapy (to work on sensory, feeding, and fine motor skills) and Physical therapy (to work on gross motor skills) every week. It’s amazing to watch her learn new skills during each session. She is our second miracle baby and we wouldn’t trade her for anything in the world!!
 

Silly Gillie


Silly Gillie
Originally uploaded by tosterbe.

IMG_2543.JPG

Gillie with her friend Faith


Gillie with her friend Faith
Originally uploaded by tosterbe.

IMG_2568.JPG

2 great iPhotos


2 great iPhotos
Originally uploaded by tosterbe.

IMG_2549.JPG

2 great iPhotos


2 great iPhotos
Originally uploaded by tosterbe.

IMG_2549.JPG

Tuesday, July 05, 2005

More Pictures for our Readers

Gillie's imitation of the Costanza

Hey YOU!

Gillie at rest

BTW, we are heading to UCSF on Friday for another head CT and to visit the Ortho Docs to see how well the cast has done to fix Gillie's foot. Please continue to pray that there will be no signs of hydrocephalus...

Thanks again,

Todd, Christy, Jordan & Gillian

Gillian Picture Refresh








Saturday, June 25, 2005

Gillian gets a cast

Yesterday we had our first visit to the UCSF spina bifida clinic. Having made the rounds to way to many specialists for Jordan, we were looking forward to being able to see of the of SB team in one visit. Our expectations were far exceeded. UCSF delivers again. On to what we learned at the clinick..

PT - keep streching her feet and lower legs. Good movement, doing well.
Ortho - Cast applied to address her club foot, measured for ortho shoes that we'll get once the cast is off.
Neurosurgery - Wound is healing well, don't worry about the blister.
Urology - Keep cathing for the next year and repeat the VCUG to see if we can discontinue the cathing.
Social Work - Will arrange for PT and other therapy as needed plus respite care.

All in all, Gillie is doing very well. Did I mention she weights 10 pounds?

In two weeks, we have a return visit for another head ultrasound and to remove the cast. More news and pictures later...

Todd